Cytomegalovirus (pronounced sy-toe-MEG-a-low-vy-rus), or CMV, is a common virus that infects people of all ages. One in three children in childcare has CMV with no apparent symptoms. What most people do not know is that CMV is the leading non-genetic cause of childhood hearing loss that might not be apparent at birth, and there may be related medical conditions as well.
When a baby is born with cytomegalovirus (CMV) infection (or congenital CMV or cCMV), families should be quickly connected for support and education. About one out of every 200 babies is born with a cCMV infection, affecting more babies than ALL of the current conditions screened at birth combined. And yet…only 14% of women have heard of CMV.
We want to bring families experiencing CMV together for mutual education and support related to this complicated condition while advocating for greater public education, prevention, and routine CMV screening at birth. Families have the right to know the full picture and have access to the antiviral medication that can be given if a baby is identified with cCMV within 21 days of life.